I woke up to a flare this morning. My entire left arm is badly swollen and this damn disease is now spreading. It's starting to wrap itself around my arm to the front of my chest. It burns badly right now but I'm just too darn stubborn to take painkillers for it. I've just gotten myself weaned off of the fentanyl patch and I really don't want to go back on them but I may have no choice.

The HS survey is complete. I'm currently in communication with a web hosting company and waiting the final written go ahead before I put my money down. They have been informed that the site may contain graphic images that others may find offensive BUT that the site is a medical awareness site. I need that written ok before I can go any further. I've been turned down twice now hopefully this will be the one.

The letter writing campaign has started to minimal involvement. About a dozen people have taken it seriously. It's a start. Next month I will write a new letter and again encourage my fellow sufferers to spread awareness. I may have to include a list of places to send the letters to.

I've got all the graphics done for the website and most of the text. Now I need stories. I'm hoping to get a few dozen people from my support groups who are willing to tell their stories. There is just so much to do and my friggen arm hurts like hell. Oh well things could be worse right?