New comers

to anyone new to HS please click on this link first and read about the disease. http://tjkorri.blogspot.com/2009/04/my-hs.html

This disease sucks

Ya I know it could be so much worse. At least I'm not dying but often I feel dead. There is so much in this life that I want to do. So much that I need to do but as it is I often just sit here in pain watching life pass me by. It really sucks. I've got to find someway to manage the pain. I've decided to go looking online to see if I can find information on meditation and pain management that uses the mind. At least I can't become addicted to that right? I need to learn how to go about my day to day life even when it hurts badly. You know I actually got a full nights sleep last night. Normally I wake up every time I move. It hurts and the pain wakes me up. It's impossible for me to sleep without moving. I get way to stiff. I guess it's a side effect of old age.

Hehehe ya I've faced the fact that I've getting old. More than half my expected life span is over now. I've never been afraid of growing old but I did expect it to be a lot different. I didn't expect a rare incurable disease that few people seem to know about, that no one knows the origins of that there is no viable treatment for, little or no research bah. But that is my lot in life.

I've recently come to terms with the fact that I am not ugly, useless or a horrible person. That's just a trick this disease plays on people.

Anyways enough of that rant.

Pain management techniques:
http://www.spine-health.com/blog/pain/mind-over-matter-effective-chronic-pain-control-techniques

http://healthland.time.com/2010/12/09/mind-over-matter-can-zen-meditation-help-you-forget-about-pain/

Using self hypnosis:
http://www.neuro-vision.us/ad/Article/Pain-Control---A-Mind-Over-Matter-With-Hypnosis/853