tag:blogger.com,1999:blog-5600175611661065765.post5704750191732717410..comments2013-10-21T02:42:20.096-04:00Comments on This, that and everything.: This disease sucksTerihttp://www.blogger.com/profile/06449193362001708412noreply@blogger.comBlogger2125tag:blogger.com,1999:blog-5600175611661065765.post-44001630250863749012011-08-02T19:32:19.810-04:002011-08-02T19:32:19.810-04:00There is a support group for fellow HS sufferers o...There is a support group for fellow HS sufferers on facebook at http://www.facebook.com/groups/HSKnowledgeiskey/?ap=1<br /><br />It's good to have others to speak with and ask questions. You may want to consider joining.<br /><br />BTW I publish this blog for two reasons. To raise awareness and to find others out there who have HS together we may be able to help raise awareness and find a cure.Terihttps://www.blogger.com/profile/06449193362001708412noreply@blogger.comtag:blogger.com,1999:blog-5600175611661065765.post-2486793650797795482011-07-10T08:13:23.107-04:002011-07-10T08:13:23.107-04:00I've just stumbled upon your blog and I'm ...I've just stumbled upon your blog and I'm glad I did. I can relate only too well. <br /><br />I have HS myself as well as a plethora of other "no known cause no known cure" diseases. I've been dealing with HS for about 16 years now and have had no luck at all with any treatment. Having tried antibiotics, spironolactone,lancing and packing, and a total hysterectomy (for HS and other reasons) I remain(ed) in constant flare and, quite frankly, gave up on pursuing other treatments. At this time we are preparing to relocate to a dryer and cooler climate in the hopes that it helps a bit because goodness knows that the doctors are of virtually no help on this matter even when they might have the best of intentions.<br /><br />I'm affected on breasts, inner thigh, groin, perianal, and (rarely thankfully) armpits though I've never had 37(!OUCH!) abcesses at one time. I do often number in the double digits though and trying to cope with cellulitis the size of a pancake (and not a silver dollar one either! lol - on my breasts) is an all too common issue for me.<br /><br />I truly commend you on your courage writing about this disease and posting the photos. That's an incredibly difficult step to take and I've not yet found it in myself to do it. <br /><br />I do, of course, wish you the best of luck and health and hope that you find at least periods of relief from this miserable crap that I don't think we'd wish on anyone else!<br /><br />Blessings and healing light to you, dear lady.Pomhttps://www.blogger.com/profile/12294207351440999597noreply@blogger.com